Lupus - A Manageable
Chronic Disease!
Let's fight it together.
Listen to Melissa's interview on Limitless Life Podcast - Talking about overcoming the "I can't Mindset", living with lupus.
23 years of fighting Lupus and still going strong!
My personal journey with Lupus
The early years
Born as a middle child, I always felt different, I had the darkest complexion of my family, I was the quietest and
mostly sickly. I guess this was part of middle child syndrome… but this diagnosis did not exist at the time. I must
add, I grew up in a God-fearing home and had everything I needed, I thank God for that privilege.
In my teens
Fast forward to my teen years, really excelled in sports and loved the competition field it was where I felt the
most freedom. At the age of 16 I had the flu that would not go away, I was treated by a Dr for this and it was
not until I had joint pains and blisters on my fingers that the Dr sent me to hospital for testing. That is where
I met my current physician Dr JJ Kritzinger, who diagnosed me with SLE (aka lupus) We obviously had no clue
what this was and while he was explaining what it was all I can remember him saying that here is no cure for
such a disease and if it is not managed/treated correctly, you could die. This devastating news could not come at
a worse time, as my dad’s business was being liquidated and we were losing everything, it was the first time I saw
my mom burst into tears as if all hope was lost. The feeling of death, hopelessness, insecurity had set in, and
although we believed in the healing power of Jesus Christ, I couldn’t help to feel abandoned by my Lord. Took
me 8 weeks to recover and get back to school. I was a skinny tall child, but when I got back on my feet, to get back
to “LIFE” I was flesh and bone, with absolutely no fat.
Took me another month to get back on the sports field, I just made sure I was medicating, sunscreen and
clothing cover. I was in no way going to allow lupus to take my sports away from me, because that is where I
found my true identity, I was more or less fine for the rest of my school days, I got sick often but it did not land me
in hospital again.
In my 20's
Reaching my 20’s I started on my downward spiral again, I landed up in hospital about 3 times of which 2 was
because of a lupus flare and the birth of my son. Yes, I got married by age 23 and gave birth to our son and age
25 years old, know that pregnancy can be a danger because of blood clotting that can put the mom and baby at
risk. But my pregnancy was an absolute breeze, I did not even suffer from morning sickness, which was another
blessing that I was thankful for.
My 30's
- 30’s has been the most eventful and challenging decade for me… these are my eventful episodes
- 3 x kidney operations (kidney stones)
- 10+ miscarriages (number not confirmed by Dr, but because of all the scarring I had when they did a DNC,
there was definitely evidence of a few babies that tried to cling onto life but lupus ripped them out of me. This
one has hit me hard. I remember sitting in the hospital asking God why? I’m a good person, I give to the less
fortunate, I work in church, I don’t drink or smoke either? Till this day, I have not received an answer - but I can
distinctly remember a beautiful dream I had of a little girl running joyfully around with a bright smile, big eyes,
long black hair. All I could think that she is being well looked after by my grand- parents, aunts, uncles who are
in heaven already. That dream somehow gave me some peace. - I was classified as obese, being over weight
- 7 hospitalisations for lupus flares
- Been retrenched at work
- Appendix removal – one I had to sign a disclaimer for as the tests and scans did not reveal an infection or any
abnormality with the appendix, but yet they could not find a reason for the abdominal pain. Only until I forced
for the removal, I never experienced that pain again - On the upside I completed my degree in business management and also completed my post graduate
diploma in Business administration .
I eventually got so tired of this cycle I decided to make a lifestyle change and that is by eating correctly and
exercising. Through the consistency of this, it changed my life. I have never been healthier that I am now.
Through sheer commitment and determination, I have landed up in hospital once, after 3 years of good health. I
even pushed it a step further by competing in a bikini competition and I did this purely to prove to myself and
others what I am able to achieve if I set my mind on it.
We are so limited by our thinking, that we sometimes fail to go beyond what we are able to achieve. If you don’t
know, competing in a competition is hectic, 6 weeks of gruelling exercise, cardboard eating and it is really
stressfull on the body. Stress is a known trigger for lupus and could be one of the reasons why I ended up in
hospital 3 months later.
Through this experience I started my business Maxed Me, where I know I can help other ladies with the same
struggles to gain not only their bodies back but also their health, confidence and life back. We get so caught up
with the “busyness” of life we often lose track and start to neglect ourselves, which is to our own detriment. We
are here now in 2019, turning 40 in a few weeks’ time and I can’t wait to enter into a new era in my life. I really
believe and expect that the next decade is going to be blissful and full of good experiences that will add
wonderful memories to my life.
So what is Lupus
Lupus is a chronic autoimmune disease that can damage any part of the body (skin, joints, and/or organs). In lupus, something goes wrong with the immune system. Due to autoimmunity, lupus creates autoantibodies that attack and destroy healthy tissue. Causes inflammation, pain, and damage in various parts of the body. (kidneys, heart, lungs, brain etc). Although there is currently no cure for Lupus, experts agree that it can be managed.
Important facts about Lupus
- Lupus is not contagious.
- Lupus is not like or related to cancer.
- Lupus is not like or related to HIV or AIDS.
- Lupus severity can range from mild to life-threatening.
Some stats about Lupus
Significant pain
experiences
extreme fatigue, hair loss,
cognitive issues, and
physical impairments,
heart, brain, lungs, kidneys
Some Triggers for Flareups
- Ultraviolet rays from the sun or fluorescent lights
- Certain antibiotic pills
- Having an infection
- Exhaustion (feeling very tired)
- Stress to the body, like getting hurt or having surgery
- Emotional stress, like being very busy or having problems at home
Symptoms of Lupus
- Fatigue (feeling tired often)
- Painful or swollen joints
- Swelling in the hands, feet, or around the eyes
- Headaches
- Low-grade fevers
- Sensitivity to sunlight or fluorescent light
- Chest pain when breathing deeply
- People with lupus may also have problems with the skin and hair:
- A butterfly-shaped rash on the cheeks and nose
- Hair loss
- Sores in the mouth or nose
- Lupus may also cause problems with the blood and blood vessels, like:
- Blood clots Low numbers of red blood cells (anemia)
- Fingers and toes turning white or blue and feeling numb when a person is cold or stressed (Raynaud’s phenomenon)
How to manage Lupus
Exercise
- From walking the dog to gardening to
hitting the gym, as long as you move - Releases dopamine
- Releases stress and negativity
- Activates muscle tone as you start
losing muscle
Different faces of lupus
around the world